PURPOSE
The purpose of this study was the evaluation of a Home Nursing Care based Respiratory Management Program (HHNbRMP) on health care ability, respiratory and psychological status and quality of life (QoL) of patients with Amyotrophic Lateral Sclerosis (ALS). The management program utilizes a home mechanical ventilator (HMV) in the home.
METHODS
A non-randomized controlled experimental design was employed. HHNbRMP based on Cox's Interaction Model which includes cognitive assent (education, specialized medical care, case management), internal motivation (airway clearance, thoracic exercise, air accumulated exercise) and psychological response (meditation & active listening). These variables were measured first for a base line reading and then at four, twelve, and twenty-four weeks. The data were analyzed by t-test/ANOVA and Repeated Measures ANOVA/ANCOVA.
RESULTS
Only respiratory difficulty among the variables showed a significant difference at twelve and twenty-four weeks (F=7.52, p=.009; F=7.58, p=.009).
CONCLUSION
The Home Health Nursing Management program was effective in managing respiratory difficulty. The patients were satisfied with this program. Applying this program tailored to patients' condition, their respiratory health parameters would be improved.

Citations

• Factors associated with caring behaviors of family caregivers for patients receiving home mechanical ventilation with tracheostomy: A cross-sectional study
  Hyang Sook Kim, Chung Eun Lee, Yong Sook Yang, Tai-Heng Chen
  PLOS ONE.2021; 16(7): e0254987.     CrossRef

PURPOSE
This study aimed to investigate the influencing factors on self care, respiratory difficulty, sleep impediment, anxiety and depression among patients with neuromuscular disease who are dependent on Home Mechanical Ventilator (HMV).
METHODS
157 patients were recruited through hospital based home nursing care departments and HMV rental centers. Data were collected by questionnaires. The analytic methods were n (%) / M±SD, χ² / t-test or ANOVA and multiple linear regression.
RESULTS
Patients with Amyotrophic lateral sclerosis were more likely to utilize HMV, had shorter periods of morbidity and the most extended daily use of HMV. As for medical equipment, they had ambu-bag (87.2%) and oxygenator (15.4%). Reports of respiratory difficulty and sleep impediment were low. There were no significant difference. In contrast, reported anxiety and depression were high and showed significant difference between non invasive HMV and invasive HMV. Anxiety contributes to respiratory difficulty (t=3.62, p=.002), sleep impediment (t=2.06, p=.042), and depression (t=7.24, p<.001). However, home nursing care exerts a positive influence in reducing anxiety (t=-2.73, p=.008).
CONCLUSION
Anxiety contributes to respiratory difficulty, sleep impediment, and depression. However, those who use home nursing care reported less anxiety. Home nursing care positively impacts patients dependent on HMV as a practical service and available resource.

Citations

• Research Paper: Anxiety, Depression, and Their Related Factors in Patients Admitted to Intensive Care Units
  Shahrokh Yousefzadeh-Chabok, Naema Khodadadi-Hassankiadeh, Alia Saberi, Atefeh Ghanbari Khanghah, Homa Zarrabi, Mohammad Reza Yeganeh, Hamideh Hakimi, Anoush Dehnadi Moghadam
  Caspian Journal of Neurological Sciences.2018; 4(15): 159.     CrossRef

PURPOSE
This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life.
METHODS
A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions.
RESULTS
The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%.
CONCLUSION
In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers.

Citations

• Burden, social support, and coping strategies in family caregivers of individuals receiving home mechanical ventilation: a cross-sectional study
  Lucyna Płaszewska-Żywko, Izabela Fajfer-Gryz, Jakub Cichoń, Maria Kózka
  BMC Nursing.2024;[Epub]     CrossRef
• Factors Affecting Quality of Life in Family Caregivers of Patients in Intensive Care Units
  Kyeong Mi Kong, Sunjoo Boo, Youngjin Lee, Jeong-Ah Ahn
  Journal of Korean Critical Care Nursing.2024; 17(2): 12.     CrossRef
• Effects of the Discharge Education Program on Family Caregivers Caring for Patients on Mechanical Home Ventilation in Korea: A Pilot Test
  Hyang Sook Kim, Gwang Suk Kim, Hyangkyu Lee, JiYeon Choi, Young Sam Kim, Eui Geum Oh
  Home Health Care Management & Practice.2022; 34(4): 258.     CrossRef
• NADİR HASTALIĞI OLAN ÇOCUKLARIN AİLELERİNDE BAKIM YÜKÜNÜN İNCELENMESİ
  Merve Deniz PAK GÜRE, Cemre PAK
  Turkish Journal of Family Medicine and Primary Care.2021; 15(2): 269.     CrossRef
• Factors associated with caring behaviors of family caregivers for patients receiving home mechanical ventilation with tracheostomy: A cross-sectional study
  Hyang Sook Kim, Chung Eun Lee, Yong Sook Yang, Tai-Heng Chen
  PLOS ONE.2021; 16(7): e0254987.     CrossRef
• Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
  Hyeon Sik Chu, Young Ran Tak, Seung Hyun Kim
  Journal of Korean Academy of Nursing.2018; 48(4): 454.     CrossRef
• The Effect of the Activity of Daily Living of Adult People with Physical Disabilities on Spouse's Caregiving Stress and Depression
  Deok Ju Kim
  Journal of the Korea Academia-Industrial cooperation Society.2016; 17(12): 371.     CrossRef
• Influencing Factors on Stress in Caregivers of Stroke Patients Being Admitted in Rehabilitation Centers
  Nam-Hee Kim, Young-Sook Tae, Yooun-Sook Choi, Joo-Hee Bae
  Journal of the Korea Academia-Industrial cooperation Society.2016; 17(2): 188.     CrossRef