| Moon Sook Hwang | 3 Articles |
PURPOSE
The purpose of this study was the evaluation of a Home Nursing Care based Respiratory Management Program (HHNbRMP) on health care ability, respiratory and psychological status and quality of life (QoL) of patients with Amyotrophic Lateral Sclerosis (ALS). The management program utilizes a home mechanical ventilator (HMV) in the home. METHODS A non-randomized controlled experimental design was employed. HHNbRMP based on Cox's Interaction Model which includes cognitive assent (education, specialized medical care, case management), internal motivation (airway clearance, thoracic exercise, air accumulated exercise) and psychological response (meditation & active listening). These variables were measured first for a base line reading and then at four, twelve, and twenty-four weeks. The data were analyzed by t-test/ANOVA and Repeated Measures ANOVA/ANCOVA. RESULTS Only respiratory difficulty among the variables showed a significant difference at twelve and twenty-four weeks (F=7.52, p=.009; F=7.58, p=.009). CONCLUSION The Home Health Nursing Management program was effective in managing respiratory difficulty. The patients were satisfied with this program. Applying this program tailored to patients' condition, their respiratory health parameters would be improved. Citations Citations to this article as recorded by
PURPOSE
This study aimed to investigate the influencing factors on self care, respiratory difficulty, sleep impediment, anxiety and depression among patients with neuromuscular disease who are dependent on Home Mechanical Ventilator (HMV). METHODS 157 patients were recruited through hospital based home nursing care departments and HMV rental centers. Data were collected by questionnaires. The analytic methods were n (%) / M±SD, χ² / t-test or ANOVA and multiple linear regression. RESULTS Patients with Amyotrophic lateral sclerosis were more likely to utilize HMV, had shorter periods of morbidity and the most extended daily use of HMV. As for medical equipment, they had ambu-bag (87.2%) and oxygenator (15.4%). Reports of respiratory difficulty and sleep impediment were low. There were no significant difference. In contrast, reported anxiety and depression were high and showed significant difference between non invasive HMV and invasive HMV. Anxiety contributes to respiratory difficulty (t=3.62, p=.002), sleep impediment (t=2.06, p=.042), and depression (t=7.24, p<.001). However, home nursing care exerts a positive influence in reducing anxiety (t=-2.73, p=.008). CONCLUSION Anxiety contributes to respiratory difficulty, sleep impediment, and depression. However, those who use home nursing care reported less anxiety. Home nursing care positively impacts patients dependent on HMV as a practical service and available resource. Citations Citations to this article as recorded by
PURPOSE
This study was aimed to survey the actual caregiving conditions of family caregivers who are caring patients with rare and incurable diseases using home ventilators at home, and to clarify any factors affecting their burdens and quality of life. METHODS A questionnaire survey was performed by the 159 subjects, and the questionnaires contained the actual conditions of caregiving activities, and caregiver's burdens and quality of life. The collected data was analyzed by ANOVA, Pearson's correlation, and stepwise linear regressions. RESULTS The mean of burden scores was 3.55 out of 5, and influencing variables included the relationships with patient (spouse), respite (moderate), health status, and diagnosis (non ALS), with the explanatory power of 30.0%. The mean of the quality of life was 2.58 point, and the influencing variables included burdens, health status, and respite (enough), with the explanatory power of 39.0%. CONCLUSION In order to improve the quality of life among family caregivers caring for patients with using a home ventilator, it is required to develop strategies for reducing caregiving burdens as well as to introduce family respite welfare systems to family caregivers. Citations Citations to this article as recorded by
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